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    July 31

    Speckled

    I am permanently speckled with white paint.  Have you painted a ceiling with a roller before?  I put three coats on the ceiling of the porch today.  No.  Actually I put two on today.  I put one on yesterday.  I have paint all over.  In my hair.  On my shoulders.  In my fingernails.  Between my toes.  On the bottoms of my feet.  My chest, my eyebrows, my nose, my elbows, my knees...it's ridiculous.  Even more ridiculous?  I've showered since I painted, and I scrubbed.  Hard. 

    Aak.

    So, 3 coats on the ceiling, 6 coats on all the raw wood, drips all over the drop cloth on the floor (and thus, on my feet)...the front of the house looks very fresh.  Or it will when I have a ladder to use this weekend and can finish the trim on the bay window and along the slanted sides of the roof, and Seth power washes the siding.  I put a total of 5 coats of Kilz on the ceiling in the office...and you can still see the mark there.  Go figure.  Same with the permanent-markered growth chart on the wall in the family room.  Put another coat of stain/finish on the shelf.  Went grocery shopping, cleaned out the refrigerator and wiped all the surfaces, wrote an email to a friend who's homeschooling for the first time this fall, bought a piece of artwork for the living room and a mirror thingy for the entry, did another load of laundry, made dinner, went to worship rehearsal, checked Joann's for a cheap piece of fabric to cover my pantry and Bryson's closet, and got a can of spray paint for the closet door I have to paint tomorrow.  Nuts.  Forgot to get more finish for the bathroom doors.  Nuts.  Knew I forgot something other than seriously sharp (yes, that's what it's called) cheddar cheese while shopping today.

    And now, to bed.  More on the list for tomorrow.  And Seth has been home two nights this week!!  What's that about??  :) 

    July 30

    Just finished...

    ...sanding joint compound on ceiling in office
    ...applying first coat of Kilz on what looks like a very old water stain on the ceiling of the office
    ...cleaning the dust from sanding

    off to shower to clean the dust off me.  any suggestions on getting it out of my nose??

    Wednesday's To-Do list

    I shouldn't really call it that.  Truly, the list will take much more than just one day...but I'm crossing things off.  That should make me feel good, right?  Yeah.  It should. 

    It hasn't yet.

    Today, I crossed these items off the list:

    -finished organizing all of our homeschooling curriculum for the fall
    -ordered everything we need to start the school year that I didn't have already except for the math we will need...we still have a bit to finish up in the books we have, so I won't order that until a bit later
    -made a list of all the fabric needs and hardware needs and moulding needs to finish all of the stuff on the to-do list
    -covered the windows in the "miscellaneous cabinet" in the laundry room (you know, the one that holds all the playdoh, playdoh tools, tissue paper, string, construction paper, nail polish and remover, plaster of paris, hair cutting stuff, dog treats and so on) with fabric
    -attempted to remove the closet door (failed)
    -put another coat of spackle on the crack in the ceiling in "the office"
    -chatted with my friend Kendra for a moment during lunch
    -started a load of laundry
    -sorted, packed and moved a file cabinet from the dining room to the basement
    -sorted the music stand (where we keep notebooks, manipulatives and paper supplies for school)
    -removed all chapter books from bookshelves in the living room and family room
    -painted the raw wood on the front porch--4 coats
    -painted the ceiling of the front porch--3 coats around the upper edges, 1 coat on the ceiling itself
    -emptied the dehumidifier in the basement twice
    -searched TJMaxx and Michaels for a piece of artwork to hang where the family pictures hang in my living room (found one, but refused to spend what it cost...may go back and give in)
    -stained/finished the trim around the new wood on the landing of the staircase
    -stained/finished the shelf I got for the other living room wall

    And here I am.  Need to switch over the laundry.  Need to put away the stain/finish and the brush.  Need to do two more coats of paint on the ceiling of the porch, and probably two more on all of the raw wood. 

    And those tasks will just finish up the jobs I started today.  The list for the rest of the week is unending.  Whatever gets done by Saturday, that's pretty much going to be it.  Saturday I'm making a cake for a friend, and packing to go camping on Sunday (Seth will be taking our last load to the dump (from the junk left in the basement from the owners before us which we have ignored for 5 years (paint cans, wood scraps, rotted interior doors, filters from the furnace, a couple of random chairs), and power washing the house).  My Aunt lists the house on Monday, so I have to leave the house in that condition when we go. 

    Prayers appreciated.  :)




    July 29

    Ellipses II

    In the kitchen… homemade sidewalk paint, which I need to cover...so much less expensive than crayola!

    From the garden… hee hee...dew.  On the feet of my dogs when they came in from outside tonight.  'Cause nothing living is coming out of the garden this summer.

    Outside my window…crickets chirping, lulling me to sleep.

    I am creating… tomorrow's insane to-do list...have to accomplish something.  Many somethings, actually. 

    I am thankful for… nieces and nephews to cherish and be splashed by.

    I am striving for… perseverance.

    I am praying for… Mark & Beka, Seth, Lauren.

    I am praising for… my sister-in-law's visit.

    On my notepad…that crazy to-do list, the name of Reasa's pageant coordinator, the beginnings of a grocery list.

    Sigh.

    There are times when I have laughed with Seth that if I didn't know God better, I would honestly think that he put the two of us together as some sort of cruel joke...his "sense of humor" gone horribly, horribly awry.  Truly, two people could not be more different.  No, really, ask around.  Anyone who knows us well just shakes his head.  We do too.  Other than the facts that we absolutely love each other, we adore our children, we both like The Wedding Singer, Fifth Element and Jerry McGuire, and we love the Lord...we have nothing in common.  Nothing.  Whatsoever.  Want some examples?  I love prints.  He likes solids (and hates me in prints).  I like bold colors on the walls.  He prefers beige or ivory.  I like music I can sing to.  He enjoys a rockin' beat, and pays virtually no attention to the words.  I like being in town, he prefers the country.  I wanted six kids, he didn't want any (3 was a good middle ground, right?).  I like my bed soft, he likes it firm.  TV?  Give me a drama or a sitcom.  Give him the History Channel or Ice Road Truckers.  I like to dress up, he lives in jeans and a henley.  I love a good romantic comedy or a suspense thriller...he would watch Adam Sandler, Will Ferrell, Drew Carey, or Ben Stiller in any movie they played in.  I love to read, he hates it.  I enjoy pilates and aerobics and the eliptical...he likes to ride bike and run.  I love NY/PA, he wants to move to Florida.  I adore my little dog...he dotes on his big dog.  I'm a night owl and an early riser.  He would contentedly sleep 14 hours of the day, and go to work the other 10.  I like chocolatey sweets...he likes fruity sweets.  I love iced coffee...he likes warm soda (ick).   There are times when, on the big issues (virtually none of which are listed here), we actually agree to disagree...but more often than not...it's a pretty big fight to get to that point. 
     
    Can you imagine how things go when we start talking about house hunting? 
     
    Can you hear God laughing just a little bit?  A deep, rumbling chuckle somewhere in the middle of his being? 
     
    Oh, I know he loves us.  I know he has some big, enormous, wonderful plan for us.  If nothing else, he is teaching our children through us how to deal with conflict.  Or how not to deal with it.   Depends on your perspective.  I know this meeting and marriage and life wasn't handed to us out of spite or vengeance.  Well, most days I know that.  Some days, I have questions I'd like answered...but really...someday we're going to understand.  In the meantime we keep saying to each other, "I do love you, hon," and we keep meaning it.  It's just that occasionally, it's accompanied by the shaking of our heads in disbelief...what was God thinking???
     
    Pray for us.  After I lose my mind here in the house for one more week, I'm taking my kids camping for 4 days, making an anniversary cake for Seth's grandparents, and then going to Georgia for a week.  Those will be the first two weeks the house is on the market.  Still haven't thought about how we're going to keep the house perfect (dust and carpet-clutter free) for that second week, but it will work itself out.  My aunt mentioned that the first two weeks are the most active weeks for a house...we're really praying that exactly the right people will walk through the house in that first two weeks, and that we can be moved in 2 months.  Ideally...that will all come together. 
    July 23

    All By Myself

    My husband has basically lived out of town for the past year.  1-3 nights a week at home is far less than half of the 7 there actually are in a week.  Therefore, the majority of the time, he is not here.  I have grown somewhat accustomed to this.  This, however, does not mean I have to like it.  I am not good at sleeping most of the time.  Sleeping as the only adult in the house...yeah, that sucks.
     
    My daughters are at camp this week.  Their first time out of the house for more than one night at a time ever.  Tonight is the first night they have been gone for more than that one night.  I dropped them off yesterday and didn't cry until we were turning out of the camp driveway...and my son said, "Mommy, are you crying because you miss Reasa-an-Lainie already?"  :)   Of the two, I really planned on Reasa having a harder time with me leaving.  At first, they did what I expected--wanted me to stay until their bunks were set up and all the other girls got to the cabin and they met their counselor and checked out the bathroom in their dorm (spoiled kids) and figured out where to place each Webkinz on their sleeping bags (Bryson had to give Lainie two of his webkinz to be with the two she was allowed to bring...he said they would miss them too much.  How do you say no to that?).  Then as it came time for us to go, we gave tons of hugs and kisses, I prayed with them, and climbed into the car, and they both gave me some more kisses, went around to hug their brother, came back to me, and Lainie all of a sudden wrapped her arms around me and wouldn't let go.  Then she pushed away from me and started rubbing her eyes..."My eyes are all watery!" she explained.  About 10 minutes and a very long hug later, she let me leave, and they both waved as I pulled away, turning to head back into the cabin before we were out of sight.  I am glad they are there.  This will be a wonderful experience for them.  But it sure is hard on a mommy's heart...'specially this mommy's heart. 
     
    My son is at a friend's house sleeping over tonight.  His dear mother found out the girls were at camp this week and that after asking for his cousin to come and stay with him (who, we found out, has soccer camp every day this week, so it wouldn't work), he asked for her son to stay with him...and she said to me, "I'm going to take Bryson for the night so that you can get something done!!"  Such a wonderful thing for her to offer (and Bryson was beside himself with happiness).  Turned out I had a Creative Memories party tonight, so it wasn't quite as productive as it could have been...but even still, my house is spotless, my dishwasher is running, I got to watch a movie by myself (too bad I fell asleep) and I'll get up in the morning and work out without worrying about who I wake up getting out of bed, who I wake up going down the squeaky steps, who I wake up tripping over the dog at the bottom, or who will wake up before I finish working out or showering...what a strange concept. 
     
    But notice something, please:  my husband is out of town.  My daughters are at camp.  My son is at his best friend's house overnight. 
     
    ALONE SUCKS. 
     
    It's 12:15.  I'm not remotely tired.  Don't want to be here by myself at all.  My friend Amy told me I could sleep at her house tonight.  So sweet of her.  How ridiculous is it that I'm almost 35 years old and I can't sleep in my own home by myself??
    July 15

    Tent Campin' in the Back Yard

    I adore my children.  Have I mentioned that??  There is very little I wouldn't do for them. 
     
    They will be hard-pressed to get me to sleep in a tent in the back yard with them again.  Because, you see, last night, that is exactly what we did. 
     
    So many of you have done this.  I know because I've heard the stories.  You pitch that tent, you do the camp thing, you make wonderful memories with your children.  In theory, this is how things were meant to go last night.  The reality, however, proved somewhat different.
     
    I went to my parents to borrow a tent, and rather than finding their (30-year-old canvas) tent, my brother assured me that their (much newer, easier to set-up, more water-proof) tent was in our attic.  Home we came, to search in the attic for said tent. 
     
    We found the tent in the fourth rubbermaid tote we looked through (after tripping over various pieces of taken-apart furniture and nearly breaking another toe), and dragged it out to the back yard, took everything out of the bags and unfolded it...to find that there were pieces I honestly could not figure out what they had to do with the structure in front of me.  And add to that the fact that I sincerely could not tell where to put poles, or how it all went together...yes, it was a time when seeing it set up previous to trying to set it up myself, or having more experience with tents in general may have been a good thing.  Hmm.
     
    About 20 minutes later, I got the thing set up, questioning even at the point when my dad dropped by whether or not it was done correctly (he agreed that it must be at least mostly right, though he couldn't explain the extra pieces in the bags any better than I could) and decided that dinner would be hot dogs from the grill, boiled potatoes (left over from the weekend) and baked apples (on the grill--soooooo yummy).  Camping food, right?  Sure.  Bryson and Lainie completely turned up their noses to the apples, and ate popsicles for bednight snack instead.  Ah, well.  I tried.
     
    So, we finished our movie before bed (because we couldn't have a campfire--there are town ordinances, after all, and something about wasting propane in the grill to roast marshmallows right now was just not appealing--plus, I left the marshmallows in the camper last weekend, and I don't have any trees to cut sticks from), and at 9:15, headed out to the tent (where everyone's sleeping bags and pillows had been set up...and had to be torn back apart and set up again before we went to sleep).  Unfortunately, we found that we needed flashlights, and all of the flashlights needed new batteries.  One of them fell apart and had to be superglued before we could go out (well, of course it did).  As I was gluing, Reasa and Bryson came back inside from the tent flipping out--someone had left the door flap open and the tent was "completely filled" with bugs.  For Pete's Sake.  I tried telling them about the nightly tradition when I was camping with my parents as a teenager--standing in the middle of our pop-up with a fly swatter, killing off the 40,000 mosquitoes which had found their way inside through the door and various other openings in the canvas.  What started as constant "slap, slap, slapping," gradually tapered off to a slap every few seconds, to a slap every 10 or 15 seconds, until most of the offending critters had died off (and had to be swept out by my obsessive compulsive mother before any of us could sleep).  The kids didn't appreciate my story.  They all claimed they were going inside, and that was the end of it.  I explained, very calmly of course, that I had NOT gone to all of this trouble and let them stay up an hour past their bedtime to have them go inside, and I was NOT sleeping outside with one kid while two others slept inside (because by this point, Lainie had joined me in the bug smacking and had decided it was more fun to kill the bugs than worry about them), and they were being absolutely RIDICULOUS, and if anyone mentioned once more that they were going inside, I was going to have to spank them, and that was the end of it.  Reasa blubbered, buried herself in her covers while the slap, slap, slapping turned into an occasional slap...and she got over it.  Bryson joined Lainie in the slapping, and it turned into a giggle fest.  Too bad I had set the tent up on the only hole Chani has ever dug in our yard (with the help of her red-coated friend and "big sister," Chelsea), and Reasa's sleeping bag was directly over top of it.  I made a trip into the house to find a pillow to fill the hole (strangely, Reasa never complained again about it once we "filled" it).  Unfortunately, I also set this tent (which I believe claims to "sleep 6" and in reality, fits 3 comfortably, with a fourth crunched up in the entrance--yes, that was me) very intelligently set up on a slope...
     
    Have I mentioned I don't sleep wonderfully in my own bed most nights? 
     
    Yeah.  It was a rough night.  My right shoulder and hip are sore, despite the sleeping bag on top of a sleeping bag trick, as well as every time I woke up, rolling over onto my back to avoid being sore.  I didn't feel like I could justify an air mattress for one night in my back lawn.  I could tough it out, right?   
     
    Have I mentioned I'm not keen on the dark?  Especially when I'm the only grown up present? 
     
    I know.  I'm a total wimp.  But I did stay outside with my children.  Everyone kept warm (mainly because I was up for most of the night making sure everyone stayed in their sleeping bags and on their pillows, off each other, and mostly Chani-free (she slept on my right arm almost all night).  Would I do it again?? 
     
    Yes.  I already told them they can do it tomorrow night (I am NOT going to all the trouble of setting the darn tent up and then only sleeping in it one night, and I am also NOT letting them sleep out there alone...call me overprotective.  I can accept that.).  So, maybe not so hard-pressed. 
     
    What can I say?  I'm a glutton for punishment.
     
    They were really mad at me tonight when I told them "not tonight."  Sheesh.  I need one night of sleep between two nights of not.  And they need the sleep too...trust me on this one.  I did take pictures, but I don't think any of them turned out all that well.  By the time I remembered the camera (my 4th trip back into the house--right before my 5th trip out of the tent to turn off the pool filter because it was making so much NOISE!!), our eyes had adjusted to the darkness, and the pre-flash on my camera to focus...it's blinding.  I have lots of squinting eyes.  I'll see what I can pull up tomorrow. 
     
    Someday I'll cherish this memory.  Right now...I'm going to bed.  To sleep. 
     
    Wish me luck.  With the sleeping, and with the second night in the tent. 

    Bridgette Update, Tuesday, 12:30pm post-surgery

    I missed Stacy's phone call (as I was bathing a dog...I know, very, very important job), and when I tried to call her back...I'm guessing she was talking to my friend Amy, who just posted this email to us...
     
    Good news! Good news! Good news!!
    The best-case scenario has taken place. While they had a scope down her throat they saw that her esophagus had become too narrow due to the fundal plycation (have no idea if that is spelled correctly) (which was the device inserted when she was a baby to help with her acid reflux and took away her ability to vomit). They inserted a balloon and dialated the area. If she can keep liquids down for a few days, then pureed foods, then slowly start solid foods again that should take care of the peoblem. If all looks good they can go home tomorrow. If  the esophagus goes back to restricting the food flow to the stomach then they will open her up and adjust her too-tight fundal plycation (again..????). But for now all looks great. There was no scar tissue, irritation, or any other unhealthy indication in there. Praise God!
     
    That is exactly the scenario they were hoping for. Not evasive. No major surgery. She is awake and feeling great and drinking apple juice. Thank you for your prayers. This family is greatly relieved and praising our God.
     
    Keep praying, folks.  Apparently, it's making a pretty big difference.  :)  Imagine that.
     
     

    Bridgette, Tuesday, 7:30 am

    Didn't hear anything from Stacy with specifics, other than her surgery got bumped back because of an emergency surgery that came in and had to be dealt with.  She goes in this morning.  I'm copying and pasting an email I got from Stacy this morning--I think she says it better than I could (hmm...imagine that) and you can hear a bit of her heart here.  I'll keep you posted...
     
    Stacy's email:
     
    It's early Tuesday morning, and in about an hour or so they'll be prepping bee for her first (hopefully only) surgery.  I didn't sleep so well last night.  I had horrible dreams that kept waking me - not to mention the nurses, doctors, etc. through the night.  For those of you touched by cdh or any other type of illness, you know what I'm talking about.  At one point I just got up and prayed.  For my family, for our little girl, and for the twenty or so other patients on the floor and their parents.  The mom who moved in next door to us last night is wonderful.  Her sixteen year old was gang jumped and had his jaw broken into tiny pieces.  My heart is just broken for her.  She is very sweet and we got to talk for a long while last night.  I had the privelege of praying for her son as he went into surgery.  He's back in his room, but I haven't heard how it went.  Well, I hope.  And then there is the mom of little Anna, who is also seven, and has brittle bone disease. The girl's have become fast friends and enjoy playing together while her mom and I bonded over living with a special needs child.  I met a delicious two year old flirt who broke his leg, but was still charming, and a six month old baby boy who broke his skull falling off the exam table at the doctor's office.  I guess I was put here to pray for them, because I seriously couldn't sleep until I did.
    Then thinking about my own baby, and watching her sleep, even now as I'm writing this.  She's so big, but so tiny.  She is terrified about what is going to happen today, and rightfully so.
    Last night she went to bed begging for food.  She has been without since Friday.  She is looking scrawny.  Daddy and friends have "pimped out" our room with all sorts of princess posters, balloons, cards and pictures.  She has rainbows everywhere, and an every increasing number of beaded key chains. The last I saw, she had a dragon fly, a flamingo, a frog, a princess crown and a rainbow.  Not to mention a beautiful rainbow necklace that she charmed "matt the volunteer" to make her.  I think she fell in love with him as much as a seven year old can.  He volunteers here because he wants to go into the medical field some day. Nice kid.  I'm pretty sure he is still in highschool.
    Anyhow, back to this morning. We will update as soon as we know anything.  I might even bring the laptop with me to the OR waiting room.
    I have this terrible sick feeling in my stomach that I get whenever she is going for surgery.  It feels horrible.  Not that it is about me by any means.  She has the worse end of the deal.  I'm not to proud to admit that I'm scared.  I think since her last surgery, I've always been waiting for the other shoe to fall.  I mean, I knew she wasn't "done" surgically.  She's just been so good for so long.   I think the farther we were from it, the longer away I hoped it would stay.
    She is starting to stir, and I want to clean her up before surgery, and get her ready myself. They have special pj's for her to wear, etc.  She does much better for mommy then the nurses...although she really has been great this entire time for everyone. Her nurses keep telling her what a great patient she is and how cute she is, etc.  Which - by the way - we already knew, but it is nice to have confirmation from others that your kid is great.  :)
    Okay, I'm off.  Love to all,
    Stacy
    July 13

    Bridgette, Sunday, about 12:00pm update

    OK, so here's the last I heard (haven't been home all day to update--sorry, friends):
     
    This morning, Dr. Caty came in (and they were so relieved to be talking directly to him), and took a look at things.  Right now, it sounds like there's a whole lot of stuff to sort out...what exactly is constricting her esophogus, namely.  After looking at the Upper GI, it sounds like part of Bridgette's stomach has herniated back into her esophogus, which is definitely an issue, but they're not sure it's the issue.  They talked about the fact that there is so much scar tissue there, it is difficult to see what's actually happening.  He discussed with them the possibility that she may be extremely infected (esophogitis??  does that sound right??), which may cause the esophogus to swell to the point that it causes constriction.  However, after extensive bloodwork, they found no elevation in her white blood count, which seems to point to no infection.  (Stacy's comment was that when you get a mild cold, your white blood count goes up, so if she had an infection that would cause this kind of swelling, you'd know it by the blood count) (So far, Stacy hasn't mentioned the possibility of the fundo slipping again to me, so I don't know if that's still a possibility--I mention that because people have asked, and I honestly don't know--I will try to remember to ask her the next time we chat).  When we spoke this morning, the plan was that Dr. Caty was going to check the OR board and find out what was on it--to see when he could get Bridgette in to do an exploratory-kind-of surgery--sedate her and put a scope down her throat to do some checking around.  They had a talk with Bridgette about what was going to happen, and she got very, very emotional, which is to be expected.  She knows the drill...sort of.  It's been a while.  If they couldn't get her in today, she would be put first on the list tomorrow morning, and then they will come up with a plan of action once they better know what they're dealing with.
     
    They did mention to Dr. Caty in all of this how frustrating it is that literally a month after Bridgette finally started eating and really making progress, this happened, and her real fear that this could be something that would cause that forward motion to cease...that she would have to be on a liquid diet for the rest of her life, especially when she is now truly learning to enjoy food.  Dr. Caty assured them that the goal in all of this would be to get Bridgette back to a point where she could eat solid foods and not have it cause a problem for her (not that that is definitely what's going on, but it has been on people's minds).
     
    On a completely non-medical note, poor Bridgette...the kid is bored silly and hungry.  Stacy mentioned that visitors are welcome!!  And when she had a few, things went really well--she got her mind off being cooped up in a hospital room and got to play with some kids.  Poor monkey--she doesn't feel sick, so this must be very hard for her to understand.  Be praying for all of them as they are cooped up in the hotel, and kind of play the waiting game.  Pray for really specific answers to be found during the scope today or tomorrow or whenever that happens.  And I'll keep you posted as soon as I know more.  Thanks, so much, my friends, for your prayers. 

    Sunday, 6:50

    Got a text from Stacy just now saying that they have not heard anything further from the surgeons, but from what they understand, there will be surgery involved--they're just not sure when or how.  Please keep praying.
    July 12

    Bridgette's latest

    After finally getting into a room at the hospital at about 3 this morning, and finally getting an IV into the poor kid's arm (I guess it was quite the ordeal), Bridgette finally got settled and got to rest a bit.  Dr. Caty (her surgeon) was contacted at home (he was off for the weekend), and is calling the shots from home as of right now--which is a huge answer to prayer for Stacy and Steve.  First thing this morning, Bridgette was able to do a barium swallow (equivalent to an upper GI?).  While sitting up, she kept the barium down, but immediately upon laying down for the x-ray, she threw it up.  In the first x-ray, it showed that the barium was all just sitting in her esophogus.  Not moving at all.  They let her sit up, and waited for a little while, and when they repeated the x-ray, it appeared that a tiny amount of the barium had passed through into the stomach.  The doctor told them that there appears to be some sort of constriction at the base of her esophogus, but they don't know what it is.  They have a CAT scan scheduled for this afternoon, and the doctor was on his way to talk to the surgical team to get opinions and ideas of what they should be doing next.  Stacy is pretty convinced that it looks as though surgery is on the docket, but she doesn't really know what that is going to look like, whether a tube down into her stomach to open things up or whether they're going to actually open her up.  The doctor talked about the fact that it's very difficult to know what to do because the spot where there is a problem is so covered in scar tissue.  They are waiting right now to find out what happens next (as of about 1:30 this afternoon). 
     
    They are asking for continued prayer for Bridgette's calmness, and for definite answers and decisions.  Stacy also asked for prayers for the boys--being away from Steve and Stacy, though she's sure they're having a blast with Grandma and Grandpa, it's always hard to be apart as a family during high stress times.  And they're really praying that Dr. Caty can do the surgery if surgery needs to be done--he has done every surgery Bridgette has had, which definitely gives him an advantage in terms of knowing her needs and her history. 
     
    A positive note...Bridgette is really hungry!  This may not seem like a big deal, but a kid who has only asked specifically for real food for the past couple of weeks saying that she's hungry and asking for food is huge.  She has the IV to keep her hydrated, but she feels genuinely hungry--after the barium test, she asked if she could take the rest of it back to her room and drink it there!!  What a blessing to have her actually wanting food...even if it is radioactive.
     
    Thanks again, friends, for praying.  I'll let you know when I find out anything else. 
    July 11

    Bridgette Update

    After a frustrating day with their local pediatrician (whom Stacy has determined, after today, she needs to replace), the Ernsts are on their way to Buffalo.  At the point where their local doctor said, "We'll see what happens over the weekend and we'll revisit this on Monday (hello, Bridgette has had no nutrition in 24 hours), and oh, I called Dr. Caty and haven't heard back from him," Stacy took matters into her own hands (we were cheering for her), and finally got through to the surgeon on call.  At 9 this morning, she was instructed by her doctor to feed Bridgette something, which she did, and then Bridgette promptly threw it up.  This happened all day long...she kept nothing down (some dry cereal for a short amount of time, but that came up too).  Her doctor told her she was feeding her too quickly...so they slowed down, with no variation in results.  Anyway, the surgeon on call said, "This warrants a trip to Buffalo," and when I spoke to her at 7:30, they were packing to leave. 
     
    Her specific requests:  first, calm and peace for Bridgette.  As a result of the amount of time Bridgette has spent in hospitals and with doctors (and the fact that she was nearly always sedated during any presence of pain as an infant), she has definite anxiety about hospitals and the like.  And absolutely no tolerance for pain.  The bloodwork this morning was like torture.  Additionally,  Stac was very specific in her request that they would be able to figure out exactly what is going on, and quickly.  She has very realistic fears that something is very wrong, as well as thinking that this could really put the brakes on the incredible progress Bridgette is making (and she has worked soooooo hard for) with her eating.  The plan is to take her to the emergency room at the Children's Hospital tonight, get her on IV fluids so as to avoid further dehydration, and then figure out what's going on. 
     
    Thank you, friends, for your prayers.  I know the Ernst's appreciate it.  So do I.
     
    Oh, and pray for Jake (3) and Alex (6) through this as well.  They will be staying with Steve's parents about 45 minutes away from the hospital while they help Bridgette. 
     
    Again...I'll keep you posted...

    Much more important than manicures...

    7 years ago, my friend Stacy learned at her 20-week ultrasound for her first child that the baby had a condition called CDH--Congenital Diaphragmatic Hernia.  Baby Bridgette had a hole in her Diaphragm--about half of it was missing, actually--causing many of the organs which should develop in the abdomen to grow in the chest cavity, severely limiting the growth and development of the lungs.  Obviously this causes serious problems for a baby.  She was cared for with this in mind immediately after being born because they knew it was coming and were prepared.  After a touch-and-go month, I believe, where God worked in amazing ways, she had surgery to repair that hole--with a Kevlar patch--and to put the organs back where they belonged.  She has gone through amazing things--feeding tubes, massive Acid Reflux, leading to a surgery to correct this condition as well, many other surgeries (including a replacement of that patch), many scares.  Several times, Steve and Stacy (her parents) have been warned that they should say their goodbyes to this amazing kid...and she has pulled through every time.
     
    Eating has always been an issue for Bridgette.  She never, ever sucked a bottle, and because most of her feedings went straight into her belly through a port designed specifically for this purpose, she never thought to put something in her mouth.  Solid foods were not introduced until much later.  When this finally occurred, I want to say she was...hmm...3? 4?...and she had an absolute aversion to putting anything in her mouth.  Two summers ago (so when she was 5), she and Stacy spent an entire summer at a feeding clinic in Virginia (they live in Binghamton, NY), hoping, through massive daily therapy, to move Bridgette from completely liquified food (think take-the-whole-meal-she-will-eat-and-put-it-in-a-food-processor-until-it-is-the-consistency-of-stage-2-babyfood-and-add-high-calorie-fillers-to-keep-her-weight-up, and that's what she will eat), to something with some substance.  As of 2 months ago, despite that 9-week training in Virginia, this was still how she ate.  Then, out of the blue, a breakthrough.  In the past month, Bridgette has eaten everything under the sun.  What made her gag before and she refused to even chew, she still might gag on, but she chews it and swallows it and eats every meal put in front of her.  She is thriving.  Bridgette has had no significant set-backs to speak of in a couple of years, other than the fact that she is tiny for her age...and honestly, this is to be expected, all things considered.
     
    Today, she started to forcefully vomit every time she ate.  Now, understanding that her surgery for Acid Reflux made it so that she could not vomit, Stacy's motherly intuition is telling her there is something seriously wrong--she is afraid her "fundo has slipped" (which I think is what they did to make sure she couldn't vomit).  She emailed and asked us to pray tonight, and to pass it along to everyone who would pray.  So, here I am, asking you to pray for my dear friend Stacy as she starts treking Bridgette to doctors tomorrow.  Please pray for Bridgette (can you imagine what this would be like for her?).  Please pray that the doctors are gentle and kid-friendly and know what to do right now.  Because her condition is so rare (a term I use loosely), not every doctor knows what to do immediately for her.  Her surgeon (Dr. Caty) is in Buffalo--if they need to go there, they need to know soon, and he needs to be available.  And things need to move quickly.  Though Bridgette is eating everything now, her weight is still very low (she weighs the same as her 3-year-old brother).  She can't afford to be throwing up what she eats and not having any way to replenish what she is losing.
     
    Please pray, friends.  And feel free to forward this to whomever you know who may pray for her as well.  Thank you!!  I'll keep you posted.
     
     
     
    To see Bridgette's Mom's blog and learn more about her story, www.everythingernst.spaces.live.com gets you there.  Information on CDH can be found on her blog as well. 
    July 09

    A Word to the Wise

    If you suddenly decide to see what will happen if you start taking care of your nails, wondering if by taking care of them they will actually grow, and they suddenly do...and you decide when they are actually looking nice that maybe you should get a manicure, because it would be relaxing and a fun little treat (haven't had a manicure in 11 years, blah, blah, blah) and you suddenly act on that whim...please note:  formula 409 removes the beautiful french manicure you paid $20 stupid dollars to have applied.  And the soft, beautiful, relaxed hands you walked out of the nail salon sporting...will no longer fit that description.  At all. 
     
    Wear Gloves.
     
    Just thought you might like to know. 
    July 08

    Ellipses I

    My version of this excellent idea shared by Stacy and by Quinne, "Ellipses will be a place to play really. Simple journal entries that expand my focus a little bit" --Quinne's words.  If you haven't read her blog yet, please do visit.  She has such a fresh, joyful outlook...I am humbled by her sweet spirit and joyous faith when I read her words.

    Outside my window... The smell of freshly cut grass...the front lawn, mowed tonight by my husband!!

    I am creating... a plan for next week, when the girls will be at camp, and Bryson will be here just with Mommy.

    I am thankful for...Seth's much-more-family-friendly schedule, a new job that he loves and the prospect of adventure in our not-too-distant future.

    I am striving for...perseverance.

    I am praying for...my friend Shannon, who may have to have his second back surgery in 3 years, and this time with much more serious risks.

    I am praising for...God's faithfulness through my obliviousness.
     
    From our garden... surprise potatoes!  I didn't plant a garden this year, knowing that we probably wouldn't be here to harvest...and I missed (several) potatoes last summer!  What a fun thing to find growing!

    One of my favorite things...over-tired children, because it means they can run and play and swim in the sun and with their dear friends at VBS.

    I am listening to...Seth planning our summer vacation with his Dad...in Georgia!
    July 07

    Just for the record

    I hate mowing the lawn when it has had two weeks to grow.  In my home, or my yard, more specifically, the husband should do the mowing.  I don't mind mowing.  Most of the time.  I just hate having to remember to do it when I'm trying to remember to do everything else inside the house. 
     
    I do not enjoy being Mommy and Daddy.  There are lovely moments where I get to do all the fun stuff--help with the cooking projects, watch them achieve, teach them a new craft, snuggle them before bed, experience those joyful moments when they're just plain wonderful--but there are also the awful moments.  The ones where you have to take something away, ground them, repeat the same thing you said for the 8th time, lay down the law...or otherwise be the heavy.  And I don't have to be the heavy too often, really, but being the only one who really has to do that throughout the week...it gets old.  And yet, since I'm the parent...well, it's certainly my job.  It's so ridiculous that I'm whining about this.  Those of you who single-parent for real, you should have absolutely no sympathy for me.  Those of you who wish you could stay home with your kids all day...you either.  No sympathy whatsoever.  I'm a big baby.
     
    A tired, big baby. 
     
    I think I'll go upstairs and wake them up and tuck them in properly now. 
     
    Yeah.  That was the horrible moment of discipline tonight.  Because after the 8th time of reminding them to do something, well, I had to lay down the law.  And I was so angry, I didn't do any of their bedtime routine.  For the first time in their lives.  It's honestly harder on me than it is on them, I think.   Actually, considering they all sobbed themselves to sleep, maybe it isn't. 
     
    Yep.  Those are the moments.  The not-fun ones.  The ones that remind you there's more to being a parent than having a blast.  The times you remember you are responsible for shaping lives.  What a responsibility.  A gift.  But so not fun.

    Observations

    On a day when you know you have 3 uninterrupted hours in your home without children present, your very-grown-up, "I-can-ride-my-bike-all-by-myself,-you-know" son will have a meltdown and not let you leave his side.  You will stay with him for the first 45 minutes of his VBS experience until he feels comfortable so as to not scar him for life (interpretation: so as to not have a guilty mommy conscience), limiting your actual productive time to an hour and 45 minutes.  Hmm.  Who's fault was that exactly??  (Humor me here, friends)
     
    When you have that hour and 45 minutes of uninterrupted time to clean your house, the entire thing will look so completely overwhelming, you will begin a blog entry rather than doing anything productive. 
     
    The blog entry you begin while you should be doing something productive will strangely disappear, causing you to yell, "Aaack!!" and wrack your brain trying to remember what you wrote, only to realize you have no idea what it was, and that whatever it was couldn't have been that interesting. 
     
    When you suddenly become very motivated, the phone will ring.  Six times.  In a row. 
     
    Mopping the kitchen floor serves as an formal invitation for your children to drink/eat something extremely sticky.  You will have to mop again after they go to bed.  Formal invitation number two.  Tomorrow, water for breakfast. 
     
    Having six children in the house at lunchtime actually does not involve much more work than having three.  Mainly because with six, you absolutely refuse to be a short-order cook.  And somebody will complain.  But that somebody, somehow, suffers through.  And eats every bite.  Hmm. 
     
    Having six children in your house suddenly reminds you that you have an appointment to have your vehicle (whose inspection ran out June 30) inspected.  And it's July 7.  And your vehicle only holds 4 children.  And you're 14 minutes late already.  Sigh.
     
    The room you clean first will be the first one in which the kids choose to play when they get home.  :)
     
    After a weekend of camping, you will leave something essential for everyday living in the camper.  It will be something inexpensive, but often-used.  You will need to replace it because the camper is stored 10 miles from your home, your husband, who is out of town, has the keys, and it's much more worth the $1 in gasoline to drive to Walmart, the 45 minutes, and the money to purchase it than even the time I have spent thinking it through to this point.  Any other solution just requires much more hassle, wasteful as replacing it may be.  I'm missing my dust pan.  And dish soap.  Nuts.
     
    While sorting through clutter on your countertops and feeling increasingly neat and orderly, you will find papers you forgot you had.  One of them will be a bill.  Which should have been paid in March (dog licenses).  You will also be required to find homes for things which currently have no home--for good reason, I might add.  There are truly some things for which no reasonable home can be found.  You will be reminded that you have not yet administered your children's end-of-the-year testing.  However, you will also find jewelry you thought was forever lost.  :) 
     
    Some observations do not require cynicism.
     
    On a day when you clean-to-organize, you will forget things.  Planning what you'll feed your children for dinner, for example.  Where you put your to-do list.  What you put on the to-do list which you can no longer find. 
     
    We're eating something tonight that is thawed.  I just don't know what yet.
     
    Oh, and now, since this post has officially taken me 8 hours to write, we had broccoli/sausage/rice stir fry.  :)  I know.  Sounds disgusting.  Interestingly, each kid ate two helpings.  And since I recently saw pictures of myself in a swimsuit...though tempted...I did not.  Ugh.
    July 06

    Bike Ridin'

    For the past year or so, Bryson has been determined to ride his bike without training wheels.  He watched his cousin learn, and since his cousin is basically his ultimate hero...well, you can imagine the motivation.  We have gone from two training wheels to one training wheel, to both wheels shoved up on the bike, but still on, back to one training wheel with one shoved up...we got to the point where the bolts that hold the training wheels on the bike no longer held the training wheels on the bike...and thus, no longer held the bike up.  The poor kid.  He got so incredibly discouraged, he just gave up.  Between last July or August and this weekend, the kid has spent hours trying to ride that bike without training wheels.  Hours and hours.  He has crashed more times than any kid ever crashed.  We have gone through more bandaids in this quest to become a two-wheeled bike rider than I thought possible.  In January, you'll remember pictures of a ridiculously warm week--my kids in shorts, out on their bikes, Bryson trying again to learn to ride--no dice.  He had resigned himself to the fact that "I'll learn how to ride when I'm 7."  End of story.  He was done.  When the girls went out to ride their bikes, he ran upstairs for a pair of socks and his roller blades.  I found out today that the little neighbor girl (just 8 months older than he) told him he shouldn't bother...he just couldn't keep up with them on their bikes (a comment he kept from me until today--obviously something that bothered him, but that he wouldn't talk about until he could actually do it).  Because, you see, now?  He can do it.  He's a two-wheeled bike rider.  Over the past three or four weeks, he's ventured onto his bike maybe half a dozen times..."Mommy, I want to try it just once down the sidewalk."  So, we would head outside and build up his confidence just a tiny bit (we took the training wheels right off when it started to get warm again, and just left it with the girls bikes...hopefully to encourage him to keep trying as he walked past it ), and I hoped (and hoped and hoped) that he would just suddenly get it.  Once again, no dice.  Until today.  On Thursday, Seth took him out...and all of a sudden, he didn't need somebody to help him quite so much.  Today, he climbed on his bike, and he rode it.  All by himself.  Over and over.  
     
    He can ride a bike. 
     
    It's all these little things I keep noticing that remind me that my baby is growing up.  My baby can ride a 2-wheeled bike.  All by himself.  I don't have to run behind him, I don't have to hold his seat, I don't have to steady the bike so he's not afraid he's going to fall, and gets off angrily, determined he's never going to learn, and yelling he's never going to try again.   I'm so glad he learned with Seth running behind him, and not me.  What a moment for Daddy, who's been gone so much over the past year.  God is so good.  He crashed seriously this afternoon, and I was sure he was going to give me a hard time about getting back on...nope.  He got back to the house and (through his utter exhaustion from a weekend of camping) got mad at his sisters for not wanting to ride with him.  He's so stinking big.  My heart just aches thinking about it. 
     
    How can he possibly be my last?  The last one I'll watch learn to ride his bike?  The last one with whom I'll have these lasts?  It can't be. 
     
    And yet, because it is, all the more reason to appreciate the moments I get with all of them.  Not taking even one for granted.
     
    Yeah.  Wow.  What a responsibility.
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